As Gia’s family and medical team explore every possible path forward, she may be a candidate for experimental and emerging therapies that require collaboration across manufacturers, research and educational institutions, medical experts, and funding partners. Building these partnerships could help create opportunities not only for Gia, but also contribute to a greater understanding of ROHHAD and potential treatments for other children in the future.

If you or your organization are interested in participating, providing resources or funding, or learning more about potential partnership opportunities, we invite you to contact Gia’s Journey or connect directly with her care team at UCSF.